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Welcome to members! Come and introduce yourself.

CharlotteL's picture
by
CharlotteL


Welcome to members! Come and introduce yourself.

Tue 1 Sep 2015 10:34am

Welcome to the forum!

What’s it all about? As the name suggests, this is a space to talk about autism with others.

You can share your thoughts and experiences, frustrations, joys and anything at all related to autism!

We want this to be a safe and friendly space to chat.

Here you can introduce yourself to the community. You might want to share a hobby or interest or your connection with autism.If you've been a member of the community for a while, you might want to share a top tip or tell us how long you've been a member. 

So I’m Charlotte and I work for Ambitious about Autism. I am passionate about raising awareness and understanding of autism and being ambitious for people with autism. I love to curl up with a good book – fiction and non-fiction. I’m currently reading IQ84 by Murakami.

 

--
Charlotte

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  • Buttercup's picture

    Hi, I'm Amy, I've had a fairly long break from the forums, but it's good to be back at last.

    I have 4 children , 2 of whom are diagnosed with ASD. My 4 year old is non verbal but very bright. I find he is constantly underestimated by people. Not everyone, but a lot of people including some family members! My 18 year old is diagnosed with high functioning ASD but really struggles with daily tasks. He has the opposite problem in that people tend to overestimate what he can cope with. He does really well when he has the right support, but he wasn't diagnosed till age 16 so he went a long time with no help at all. He also has Ehlers-Danlos syndrome (hypermobility type). I also have a daughter who has severe Ehlers -Danlos syndrome and seizures. She has 2 young children . I also have a 2 year old. He seems to have no health or developmental issues at all, which is very strange for me, as my experience of parenthood has not been a typical one so far! 

    we also have an 8 month old golden retriever, 2 rabbits and some chickens. I love love love cats, but had to give my beloved cat to my mum, as my partner was so allergic it made him ill Sad

    I love running and am hoping to get back into it more now that Leo has started at school full time. I also love to read.  Charlotte, Murakmi is one of my favourite writers, I'm actually slightly obsessed with his work! I hope you enjoy IQ84. 

    Ive just started getting into baking as well, as Leo loves to cook. I'm experimenting with some healthy recipes as it was getting a bit unhealthy with all the cakes and biscuits we were producing! 

     

    Amy - Community Champion
  • CharlotteL's picture

    Hi Amy,

    Oh wow. I've just bought Strange Library by Murakami as it looks so beautiful. Nice to know there is another fan!

    Lots of animals -- I've had a dog and also a house rabbit who was so friendly and used to greet you as you came home! 

    Charlotte

    Charlotte
  • Yummymummy13's picture

    Hi all... we are at the start of our journey so to speak... we have a daughter aged 2 & a half who is undergoing all her first appts and assessments. We have suspected for ages that shes autistic and now having read up extensively on the subject and spoken to many different people we are sure she is. Its been a rollercoaster of emotions but we are determined to do the very best for her.

  • CharlotteL's picture

    Hi Yummymummy13. Welcome to the forum.  smiley

    You might want to check out our section on Diagnosis and you're welcome to open any new threads if you're looking for information or advice from other parents:

    http://www.ambitiousaboutautism.org.uk/understanding-autism/diagnosis

     

     

    Charlotte
  • SherpaMum's picture

    Hi and welcome from me.  Having the assessments done at an early age will hopefully help you access all the relevant help at an early stage, which is really good.

    Yhe diagnosis process is an emotional nightmare, even when you are expecting a diagnosis the actual diagninosis can still hurt.

    hang in there.

  • big mouth strikes again's picture

    Hello - I am a parent to three children, my daughter aged 9 has a diagnosis of HF ASD and my 11 year old son is probably on the spectrum but we have not looked to get an official diagnosis as yet. My youngest daughter is NT as far as we know.

    My daughter has adjusted well to her diagnosis and is very accepting of it and is is clever enough to use it to try and get out of things at home. She does struggle at school at the moment ,(we have a 3 tier system in this county) so she has started middle school this term. She is being supported by a 'mentor' and assessed for an IEP but I have asked for a meeting this week with the SENCO. This is to go over a recent report from an LA Occupational Therapist and the concerns/ suggestions raised within.

    My daughter is pretty sociable but she finds it hard at break times and has a tendency to wander aimless and lose track of people. So I worry that maintaining friendships in a busy school environment is going to be hard. Her big brother used to get very stressed out by trying to play football every break/ lunch time.He would come home crying because the boys were rough and pushed and shoved each other and it was too chaotic. He has now opted to spend lunchtimes in the library - not very sociable but he has been so much happier since. Much of the acceptance process for me dealing with the reality of children diagnosed with high fuctioning Autistic spectrum disorder, is that you need to adjust expectations in line with what makes your children happy and secure, not with what you feel they 'ought' to be doing.

    Anyway currently I am a stay at home parent so I can be there to pick up the children and take them home and allow them the luxury of their own interests/ TV/ Computer and fewer expectations while they de-school. It would be much harder to manage that if I work. So while I am keen to go back I am worried about the knocl on affect to their stability. It does seem life is a very delicate balance these days...

    Cheers

     

  • SherpaMum's picture

    Hello and welcome.

    my son is 8 and high functioning.  As you say the school playground can be a mine field.  My son does all sorts of clubs to avoid it.

    i work, but my hours are such that I can normally pick him up from school.  I have suggested the school bus, but that has met with a near meltdown just at the suggestion.  

    I seem to be in a permanent state of rushing around!  Don't mention housework.  Finding the right balance is very difficult, and I just have the one child!

  • NickyB's picture

    Hello and welcome:)
     

    Iam Mum to 2 boys of 17 and 12. My yongest has autism and attends a special school.He too has issues with the playground - they have a quiet area where he can go to avoid it.

    It is a difficult balance between home and work. I am very lucky as I work term-time only as a dinnerlady at another school locally, so I'm always around for him when he's not at school. Life is pretty busy, though  - not much time to sit down adn relax!!

    Nicky - Community Champion
  • flyingcloudkitty's picture

    Hi, my name is James and I was diagnosed with Asperger's Syndrome when I was 26.  I'm 42 next month, although some people still think I'm under 25.  I've lived in my own home since age 30 and have a pet cat I take walks (without a leash).  I like running, playing strategy computer games, collecting Lego, and chatting to others with Asperger's.  I must have met around 500 individuals on the Autistic Spectrum in the last 16 years.    I used to run a real life Autism group which I still attend sometimes, and I also met my first real life friend there 5 years ago.  I'm still close friends with her and she helps take photos of my Lego set-up's, and also takes me to the Autism group since I'm agoraphobic and rarely go outside on my own.   I have another friend with AS who lives about 15 minutes walk from my house, and she lets me borrow dvd's from her dvd collection.  I often give dvd's to her too and she participated in all three of the 20-hour board game sessions I held at my house with some other people from the Autism group!  (The board game was held over 3 days).  

  • SherpaMum's picture

    Hello.  My son is ASD, high functioning. He is only 8, but loves his computer and all things Lego.

    Your board game sessions sound amazing!

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