Well, just thought I would give a little update (lack of) we still don't know if the first born is on the spectrum or not. I really thought all the assessments would be finished by now, I've read that some people have an answer in months and this has been going on for years. The school are using the term autism in relation to him now but I'm not convinced that he will get a positive diagnosis. The ADOS was months ago now and we haven't had any feedback other than "he did really well actually" as he was handed back to me. I don't even get stressed about it anymore, however I am getting concerned that secondary school is fast approaching and that is making me feel very very uneasy.
Has anyone gone through years of assessments and come out with a negative dx? What happened after that?