I am absolutely distraught. I am 99.99% certain that my son is autistic. His peadiatrician has hinted to as much as well although said she can't say officially until he has his ADOS. Had the ADOS today and he was so anxious that they couldn't get him to interact with them and therefore couldn't score him. I initially had him referred to the CDC when he was 18 months old - he's now four and a half years old - and we are three weeks from moving out of the borough. It has been a long and exhausting road with months between appointments. This ADOS was supposed to happen four months ago. We were reffered to the clinical psychologist 13 months ago and still no appointment! Meanwhile we are left to deal with his communication difficulties and behvioural problems and sensory issues and everything else all by ourselves. His school are sensitive, supportive and flexible but they have their limits. We were so hoping to get a diagnosis before we move. They said they would get him seen in school but every time we have to wait until the next assessment it takes months and we only have weeks. The thought of starting all over again in a new area is so depressing to me. I don't think I have the physical energy or emotional strength to go through another three years of this!
Sorry for the rant. In short...
1. has anyone gone private? Can you share your experiences/advice? I realise not all LAs accept a private diagnosis but this doesnt bother us as we will probably home school after the move anyway and I've been told the label can be irrelevant as help/funding etc. is allocated on individual needs and so I doubt we'd get more assistance than we currently do, which is little. The diagnosis would be for him so he can better understand himself and for us as a family so we can access certain things like autism-friendly events and communities.
2. has anyone found they were able to access autism-friendly events and communities without an official diagnosis?
Thank you for you time.