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Pervasive Development Disorder (PDD) not specified - information

laura97c's picture
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laura97c


Pervasive Development Disorder (PDD) not specified - information

Wed 15 Mar 2017 5:59pm

Hello, my son was diagnosed 2 years ago in France as being PDD not specific.  He has regular sessions of psychomotricity and we see a pedopsychatrist about 2 to 3 times a year, he has someone to help him in the classroom and in general he is making progress above all with his social skills.  However there is so much that my husband and I do not understand, firstly the diagnostic, we have understood that he is basically in the spectrum of autism and that he is affected lightly.  There seems however to be very little literature or an understanding of where it will lead, the school and the team who work with Oscar seem equally vague, we do not know if the school where he is currently at will be able to accomodate him through to the end of primary and if they cannot we donot know where we would put him or orientate him, I cannot imagine Oscar in a specialised school.  Most of the time he appears like a normal 6yr old and now it is rare to see any 'autistic movements' that we did sometimes see in the past, he has developed socially and his teacher has told us that he is playing with his group of friends, rather than just observing.  At home we do have some issues but as a family we have adapted and our extended family have finally accepted that there is an issue, so it is also making things a bit easier when Oscar is not behaving perfectly in situations which are difficult for him.   At school he clearly functions very differently to the other children, his teacher has told us that she will have the impression that he has not understood or assimilated something and then suddenly out of nowhere he appears to have understood everything.  He has a very good relationship with the teacher and this has given him the confidence to try even if it feels difficult.  He is starting to read but although verbally is able to construct a sentence he cannot write it down.  It is impossible to evaluate him and thus although he appears to be intelligent and able to assimilate information, he is not at the level of the class.  Oscar tires easily mentally especially after the efforts he is making at school, so we cannot do too much extra work with him at home and I am worried that this would be in the long run counterproductive as he may get fed up and shut down completely.  Today Oscar is fully supported we have an amazing team, and he is still young so the difference that is becoming more evident is still not completely recognised by his peers, plus he is lucky enough to have a amazing group of friends who adjust to him and do what is necessary for Oscar to integrate the group.  Our worry and my question today is what does the future hold, and are there any organisations or doctors specialised in children who are like Oscar in the autism spectrum but not considered as autiste, who might be able to help us better understand his condition and what we should put in place to try and ensure that he has a normal as possible scolarity and eventual integration in the workplace.

The other thing that we have considered is diet, someone spoke to me about the link to autism and the digestive system.  Oscar has always had quite bad breath and the dentist told me it is nothing to do with his teeth but his digestive system, again are there any organisations or specialists who have more information on this. 

I thank you all in advance for any advice or help you can offer us, apologies for the lenght of my text, I hope it makes some sense.

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laura97c

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2 Comments

  • SherpaMum's picture

    Hi and welcome.

    I am afraid I have not heard of TED, what does the diagnosis mean?

    It sounds like Oscar is doing really well. Often the struggle of controlling things at school can lead to more challenging behaviour at home. 

    My son often does not appear to be listening at school, but he is, he just listens in a different way to the other children.  He may take a bit longer to pick something up, but once he does he knows it. Clearly Oscar is understanding, he is just struggling with writing.

    Everyone on the spectrum is different, so what the future holds for our children will differ greatly. The school, SEN and professionals involved with Oscar should be able to offer you advise on schooling.

    I would be interested to see if anyone has any input about the digestive system as my son can have bad breathe, I had put it down to his perpetual bad throats!

  • laura97c's picture

    Hello

    Thank you for your reply, it is in fact in English, Pervasive developmental disorder not otherwise specified (PDD-NOS), TED is the French name, in France I have the impression it is still recognised but I think in the US and UK Oscar is seen as having an autism spectrum disorder, he shows some signs of autism but he is also capable of doing things which means he cannot be diagnosed as Autist.

    We try to focus on the progress he is making but it is difficult not really knowing what the future holds.

     

     

    laura97c

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