I wonder if there are any autistic adults getting direct payments to pay for a support worker or personal assistant? My family are currently trying to work out how to manage what will happen to me in the future when they are not able to care for me anymore. I need a lot of help to do daily tasks like cooking and cleaning and getting out of the house. I cannot work or go to the doctor or vet, etc by myself.
I wonder if any other autistic adults have any experience of being cared for not by their parents, and not in a residential home? I know a lot of autistic people live at home until their parents cannot care for them anymore, and so I think there must be others in my situation? I am in my mid-thirties now. My family does all the caring for me at the moment, but realistically this cannot continue forever. Also both of my parents are not able to care for me as much as they used to be able to, so they need help. I am going to have a social care assessment. I would be really interested to hear what social care any other autistic adults get and how they cope with it. Do you like it? What help do you get? How do you deal with people coming into your house who are not your family? I know I need help from outside my family but it's hard to imagine what it might be like, so I hope someone out there has some experiences they can share, hopefully positive!!!