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ChasingButterflies's picture

Private Diagnosis Recommendations

Sun 10 Jan 2016 5:55am

Hi there, 

Seriously considering having a private assessment conducted for my son and looking for recommendaions in the London or North Yorkshire area (or someone willing to travel). 

It would have to be someone who could assess him at home as he shuts down in unfamiliar environments. 

I realise it may not hold any weight with NHS services but that's fine. 

TIA xx 

ChasingButterflies's picture

Unable to Score ADOS :-(

Fri 8 Jan 2016 3:20pm

Hi everyone. 

Buttercup's picture

Pathological Demand Avoidance

Wed 6 Jan 2016 1:13pm


Hi, I subscribe to a few blogs on autism and I recently came across this blog post on PDA https://taniaannmarshall.wordpress.com/2016/01/02/jekyll-and-hyde-children-or-pathological-demand-avoidance-syndrome-pda/ it was like a lightbulb moment for me and I started reading up on it pretty much immediately. It is part of the autism spectrum, although it is not recognised by all countries as a separate diagnosis. 

Amy - Community Champion
Hayleigh Sharp's picture
Hayleigh Sharp

Advice please!

Tue 29 Dec 2015 9:19pm

Hi I am desperate for some advice on my boyfriend who has Aspergers. We have been arguing about various things recently but the main one being that he doesn't work. He is 24years old and hasn't worked since leaving school. He has tried various jobs for a few hours but says he couldn't cope. We have been together 2 years now and I just can't see any future between us if things don't change.

Silly Sally's picture
Silly Sally

Seriously, how long should a diagnosis take?

Mon 23 Nov 2015 10:07pm

Well, just thought I would give a little update (lack of) we still don't know if the first born is on the spectrum or not. I really thought all the assessments would be finished by now, I've read that some people have an answer in months and this has been going on for years. The school are using the term autism in relation to him now but I'm not convinced that he will get a positive diagnosis. The ADOS was months ago now and we haven't had any feedback other than "he did really well actually" as he was handed back to me.

BethLSBU's picture

Stu S's picture
Stu S

New and open to advice

Mon 26 Oct 2015 8:17pm

Hi there, my 2 year old son has very recently been diagnosed as being on the autism spectrum. It hasn't' been a complete shock as myself and my wife had our suspicions. Now it has been realised we are finding it hard not to analyse everything he does and feel he is now worse than he was before even though this probably isn't the case. Just got through another meltdown while trying to get him ready for bed.

JosieB's picture

The Lost Girls

Sun 25 Oct 2015 5:21pm


Just been reading this really interesting research on girls on the spectrum.    It's called The Lost Girls and it's from the Spectrum News.    Some really good observations in it.



Josie - Community Champion
CharlotteL's picture

Top Tips

Thu 15 Oct 2015 12:28pm

Hello everybody,

For our next newsletter, we would love to have a regular "top tips" section for parents/carers and families. 

This month we'd love to know your top tips for parents and families who may be going through the diagnosis process for their child or someone they know?

We also welcome suggestions for any future top tips ideas.

Look forward to hearing your thoughts.  

Moira.s.x's picture

In need of advice!

Mon 5 Oct 2015 1:59pm

Hi. I have a son aged four, diagnosed with autism this year. And now am really worried about my younger son who's really two.
Both boys are very different my four year old, is now talking but had speech delay, he attends mainstream school, he's quite, spends a lot of time on his tablet, lots of anexity, and social difficulties as well as poor eye contact and poor diet.



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