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Diagnosis

Jk2833's picture
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Jk2833


Rheumatology & Autism

Sat 30 Jan 2016 3:10pm

Hi does anyone know of any  rhemotology conditions that can be related to/with Autism? or have experienced a condition themselves with their child? The reason I'm looking for this information is due to A blood test that has been taken for chromosomes which has came back and we now have an appointment with a paediatric rhemotologist.

I really don't know what to expect and we have to wait until May!

thanks for reading, take care

jk

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Jk2833
S J Wardell's picture
by
S J Wardell


Support Rquired

Sun 24 Jan 2016 6:18pm

Many people discuss the support needed by parents, but what about the support needed by those diagnosed?

My son was recently diagnosed with being on the spectrum; my wife and I punched the air as we thought that this would provide a catalyst for the support our son needs. How wrong we were! Since our sons diagnosis, we are no further forward than we were six years ago. Do we have to continue to raise our son without any support, or direction? What an complete sham this is for any person with a hidden disability and those who care for them.

CharlotteL's picture
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CharlotteL


Early Years Assessment -- Ambitious about Autism project

Sat 23 Jan 2016 4:18pm

Hi all,

Early Years Assessment and Parent Training Programme

 

Do you have a child with a diagnosis autism aged 1 – 4?

Are you based in London?

Are you applying for or currently undergoing EHC needs assessment?

Able to attend a 2 day parent training at Ambitious about Autism, North London?

 

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Charlotte, Community Manager
ChasingButterflies's picture
by
ChasingButterflies


Private Diagnosis Recommendations

Sun 10 Jan 2016 5:55am

Hi there, 

Seriously considering having a private assessment conducted for my son and looking for recommendaions in the London or North Yorkshire area (or someone willing to travel). 

It would have to be someone who could assess him at home as he shuts down in unfamiliar environments. 

I realise it may not hold any weight with NHS services but that's fine. 

TIA xx 

ChasingButterflies's picture
by
ChasingButterflies


Unable to Score ADOS :-(

Fri 8 Jan 2016 3:20pm

Hi everyone. 

Buttercup's picture
by
Buttercup


Pathological Demand Avoidance

Wed 6 Jan 2016 1:13pm

 

Hi, I subscribe to a few blogs on autism and I recently came across this blog post on PDA https://taniaannmarshall.wordpress.com/2016/01/02/jekyll-and-hyde-children-or-pathological-demand-avoidance-syndrome-pda/ it was like a lightbulb moment for me and I started reading up on it pretty much immediately. It is part of the autism spectrum, although it is not recognised by all countries as a separate diagnosis. 

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Amy - Community Champion
Hayleigh Sharp's picture
by
Hayleigh Sharp


Advice please!

Tue 29 Dec 2015 9:19pm

Hi I am desperate for some advice on my boyfriend who has Aspergers. We have been arguing about various things recently but the main one being that he doesn't work. He is 24years old and hasn't worked since leaving school. He has tried various jobs for a few hours but says he couldn't cope. We have been together 2 years now and I just can't see any future between us if things don't change.

Silly Sally's picture
by
Silly Sally


Seriously, how long should a diagnosis take?

Mon 23 Nov 2015 10:07pm

Well, just thought I would give a little update (lack of) we still don't know if the first born is on the spectrum or not. I really thought all the assessments would be finished by now, I've read that some people have an answer in months and this has been going on for years. The school are using the term autism in relation to him now but I'm not convinced that he will get a positive diagnosis. The ADOS was months ago now and we haven't had any feedback other than "he did really well actually" as he was handed back to me.

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BethLSBU's picture
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BethLSBU


Interviewing Individual's with Asperger's Syndrome about their Experiences and their views on the DSM

Fri 20 Nov 2015 11:12pm

Hello everyone,

My name is Beth and I'm a BSc Psychology student at London South Bank University. You may or may not be aware (I only found out earlier this year) that Asperger's Syndrome was removed from the DSM (Diagnostic and Statistical Manual of Mental Disorders) in 2013, so it doesn't exist as a diagnostic category anymore. I would like to interview individuals aged between 18 and 25 who were diagnosed with Asperger's Syndrome before the age of 16, about their experiences with the condition and their thoughts about the diagnostic change and its possible implications.

Stu S's picture
by
Stu S


New and open to advice

Mon 26 Oct 2015 8:17pm

Hi there, my 2 year old son has very recently been diagnosed as being on the autism spectrum. It hasn't' been a complete shock as myself and my wife had our suspicions. Now it has been realised we are finding it hard not to analyse everything he does and feel he is now worse than he was before even though this probably isn't the case. Just got through another meltdown while trying to get him ready for bed.

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