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Diagnosis

Angel11's picture
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Angel11


Feeling really frustrated !!!!!!

Fri 17 Jul 2015 5:54pm

My son will be 4 in October. He has been attending the Assessment centre for nearly 2 years. He has recently finished having Assessments for ASD. He had an ADOS, a 3di, plus 5 various observations. I had the results on Thursday, which they have said were inconclusive. The 3di and all the observations pointed towards ASD, but he didn't score enough points in the ADOS to get a diagnosis. I now have to wait 6-10 months before the will repeat the ADOS, we will then get a definite diagnosis. 

I'm feeling very frustrated by this. Has anyone else had this happen? 

 

JosieB's picture
by
JosieB


Autism on TV tonight

Wed 15 Jul 2015 8:48am

 

Don't miss the second episode of the Autistic Gardner tonight at 8pm on Channel 4. You can still catch up on last week's show if you missed it on All 4. Or at 10.40pm on ITV there is a show called "Girls with Autism" a one-off documentary which follows pupils at Limpsfield Grange in Surrey, the only state run boarding school in Britain specialising in girls with autism.

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Josie - Community Champion
autism2015's picture
by
autism2015


"Autism- from science to practice". Invitation to conference.

Tue 14 Jul 2015 3:56pm

We invite you to our conference, Autism – from science to practice, which will be held in Krakow, Poland, 25-27 September 2015 (http://autyzm.psychologia.uj.edu.pl/). The aim of the conference is to present current, reliable information to psychologists, therapists, teachers, parents and care-givers. To achieve this goal, we have invited the most notable, world-renowned scientists, specializing in autism research to Krakow, as well as the best global and Polish scientists and clinicians, who deal with autism diagnosis and therapy.

debgla's picture
by
debgla


My daughter has been referred for assessment

Tue 14 Jul 2015 12:16pm

Hi, I have a lovely 13 year old girl. She suffers from anxiety, she hides this very well no-one is aware other than close family members. Her anxiety manifests itself in she needs a lot of reassurance, struggles to make decisions, bad temper and to a degree social isolation. She says she hears voices, which scares her. She is a grade A student, very studious and well liked. She makes no effort with friends, she has a small group of whom she is fond of but doesn't like to spend too much time with them. When she's in a large group she says she feels invisible. It's heartbreaking.

Every Cloud And All That's picture
by
Every Cloud And...


My daughter may have ASD

Mon 13 Jul 2015 6:20pm

Hi everyone, I'm new to the forum and I'm hoping for some advice. I'm a father of three children and just like most families work extremely hard to provide a good life for my children. We have a daughter who is now 17 and to be honest looking back now we feel so guilty that we missed so many signs that something was not quite right.

Gw0rg4n's picture
by
Gw0rg4n


Parental experience of the ASD diagnosis process

Sat 11 Jul 2015 10:21pm

 

Hi all! I'm collecting data as part of my Masters course which involves a questionnaire for parents of ASD children that are of primary school age.  The questions are about parental experience of the diagnosis process. For more information and to take part please follow the link below and please share the link with others who may be able to help. With sufficient participants it is hopeful that this research can be published and potentially aid the way in which the diagnostic process is conducted for example by providing additional support for families.  

 

Dizzy90's picture
by
Dizzy90


Worried about family not having involvement in diagnosis

Sat 4 Jul 2015 7:57pm

Hi all,

My very first appointment for diagnosis is coming up in a couple of weeks, and I'm getting a little worried about it! I received some consent forms yesterday, one was asking for my consent for a family member to attend an apointment to give more information about 'development' and asked for me to give that family members details and relationship to me. 

--
The stars and the moon will be gone too soon, and tomorrow becomes today
Mel 832's picture
by
Mel 832


My little girl

Wed 1 Jul 2015 1:54pm

Im so frustrated, my daughter is such a happy little girl and because she doesnt speak as much as some other children in her age group they want to test and label her.

Im angry and feeling alone i dont know what to think? im struggling to get my head around it and i shouldnt because i worked with autisic adults so i know the drill.

is this my fault?

have i messed up as a mum?

she isnt even diagnosed and she is being treated "different" by close family.

JosieB's picture
by
JosieB


Women Magazine

Tue 30 Jun 2015 12:19pm

Are you a woman, over 35 years of age, who was diagnosed after her children were diagnosed?

 

If so, Ambitious About Autism would like you to contact Katie at kchodosh@ambitiousaboutautism.org.uk in the first instance.

 

 

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Josie - Community Champion
Dizzy90's picture
by
Dizzy90


Finally - Stage One appointment!

Mon 22 Jun 2015 6:55pm

Hi everyone,

Once again I have been useless at logging on, but I'm here again!

After a years wait, I have finally received a letter confirming I have my Stage One appointment next week. I am going to have to try and move it as they've booked it for a day when I have work (being on a zero hour contract I don't have the luxury of very much paid leave) but worst case scenario, I will loose my days pay and be there next week. 

--
The stars and the moon will be gone too soon, and tomorrow becomes today

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