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El's picture

New to this

Sat 28 Mar 2015 4:13pm

Good day, I am new to this forum, and just embarking on this journey. I am mom to 11 year old Kian and 3.5 year old twins Benjamin and Christofer. My post is about my son Ben. We have not received a diagnosis yet, but we have been told our son needs to see a Pead Neurologist. It was a bit of a shock, and made it all very real, we have over time observed many things with Ben's behaviour and development that has caused concern. Speach delays, irritability, mood swings, repetitive behabiour, temper tantrums, melt-downs, difficulty functioning socially, not potty training etc etc.

mld78's picture

First steps on Monday morning

Fri 27 Mar 2015 7:55pm

A few months ago, well 7th October at 1.50pm to be precise, my psychiatrist said "it doesn't say in your notes that you aer autistic."  My Community pyschictric nurse replied, "No she isn't", but the psychiatrist said again that he was sure that I was, my husband said that he had always thought so and I could understand a little of what they ended up talking about.  

Silly Sally's picture
Silly Sally

How would an adult get diagnosed?

Wed 25 Mar 2015 10:42am


Ok, so it's taken a while but my husband said to me last week that maybe he is autistic. (I've thought that for quite a while but not mentioned it.)

If he wanted to, how would he go about getting a diagnosis and would it help? Would he get any support to understand his thought process and his emotions? He's in a steady job where he only has to grunt at people and has specialised interests and mainly connects with other people online. He is in his mid 30's.

Any advice welcomed, thank you

Sally x

felinedot's picture

Filling in quizzes...attention to detail

Sun 22 Mar 2015 9:52am

So, I'm taking advantage of this quiet Sunday morning to collate the answers to the Relative's Questionnaire and to complete the answers to the AQ, Cambridge Behaviour Scale and General Wellbeing quizzes I've to return to earn my place on the local waiting list for adult assessment. It's taken nearly 4 months just for me to receive these forms!

Texas12211's picture

What is the plan for my child?

Fri 20 Mar 2015 7:51pm

We have so many unanswered questions.    Our child is 16 months.   Am told we cannot do further testing until she is 18 months.    But we see regression already as early as her 12 months.  She won't crawl walk or talk.  She can't even stand because she is very wobbly..  She doesn't say any words.  No babbling.  Very little eye contact.  Doesn't understand how to play with toys.  We are being told she has autistic behaviors and we don't know anyone we can talk to   On the topic.

Djandmummy's picture

Beginning of diagnoses

Thu 19 Mar 2015 9:04pm

Hello everyone, 

I am new to this forum and thought I would introduce myself, 


My name is Kelly and I have a beautiful little boy, and three other children, my little one had a visit from the HV for his new year development check, and she noticed he was quite a busy little man who got quite upset with himself, and noticed his speech was quite delayed, not really saying anything other than mum, bye bye etc 

Forestfriend's picture

Chat with those going through diagnosis process?

Wed 18 Mar 2015 7:55pm

Just wondering if any of you out there going through diagnosis process want to chat, whinge, whatever.  I just feel I need to chat with those going through same thing, what symptoms your kid is experiencing, services that you are able to access (despite being undiagnosed), etc.  My son is 2.5 and I am convinced he is asd but as to the severity I have no idea, and my husband and I have no idea what we have in store for us in the future.  My son is having major difficulties verbally and although he has some words, doesn't seem to know how to use them to request things etc.

cariad's picture

We got a diagnosis!!!

Mon 16 Mar 2015 4:28pm

So assessment day arrived and we have been given a diagnosis that our son is on the social communication disorder spectrum and that he is at the aspergers end of that spectrum.

This is such a relief to us. I feel so bad for being happy that my child has been diagnosed with something however seeing him struggle so much over the years we have needed this

We have absolutely no idea what to do now, we will be getting a follow-up appointment but that might not be for another 6 months.

Theodor's picture

Diagnosis of childhood disintegrative disorder (Heller's syndrome)?

Sun 15 Mar 2015 5:05pm

Hello! This is my very first post here. I wonder if the community may help me solve a conundrum.

My 4-year old son had age-typical and unremarkable development in language and social relations until four months ago, when over a short priod of time he stopped responding to questions and initiating conversations. His speaking, interactions with other children and adults, and eye contact have declined steadily since then. Now he speaks very rerely and incoherently.

gatheringwill's picture

Possible Assessment

Fri 13 Mar 2015 8:48pm

If I am accepted for assessment should I take my mum with me? I am 40 years old and obviously I don't remember much about the way I was as a child. Would this be helpful for a proper diagnosis as I have compensated over the years as I think a lot of people do/have


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