Hi, I just joined today, trying to find someone somewhere who may be going through/gone through what we are. Our youngest child was diagnosed with autism at 2.5 years old - he's now almost 7.5 years. A few months after his autism diagnosis he was diagnosed with Idiopathic Thrombopycenpenic Purpura (life threatening bleeding disorder). A couple of years of this, it cleared up, then a few months later started having vomiting fits which led to a diagnosis of metabolic acidosis (another life threatening metabolic condition).
My son is having so much seizures it is tearing me apart, so distressing, medications not seems to be working, keep changing but seizures are getting worst.
Does anyone knows what food may trigger a seizure, he is on a wheat, gluten and dairy free diet,HELP ME PLEASE SOMEONE, I am so tired!!
Ok so this will be a little long but first the news. scans all came back negative no tumors or masses thank God! But we are still left with few answers as to why his HVA levels are off and so on. Basically have to keep an eye on the levels and then decide when and if they want another scan.
How can I prepare my 2 year old autistic son for a needle? He has to get one for his tests later this week and I haven't the faintest idea how I can prepare him. I have showed him pics of the hospital and we have been talking to him about going and reminding him about the playroom and all that.
So our 2-year-old little boy had gone in for a MRI, overnight EEG and blood and urine tests prior to his diagnosis of Autism. The whole idea was to rule out anything else... and they sort of did but not fully. They found his HVA levels elevated. They had us repeat the test. His levels had nearly doubled in 2mons. They suspect he has a neuroblastoma in his chest or stomach. This Wednesday we are heading back to the hospital about an hour from us for MRIs and CTs for his chest and stomach. Also some other metabolic test or something that for the life of me I can't remember the name of.
I participated in a group on essential oils and got some info from them on ones reccomending for sympotoms asssociated with autism. Do any of you use them? if so which ones and what for? we are going to be trying a few different ones and see if any help reduce our little man's stress and anxiety.
Circumcision may be connected to a boy's chances of developing autism, according to a new study out of Denmark.
Boys under 5 who were circumcised were twice as likely to have autism as boys who weren't, according to a study of 340,000 Danish boys.
The reason for the correlation is not clear, but may be related to the agony of the procedure.
its 12 days to my ADOS assessment and it can't come soon enough. But being currently diagnosed with mental health i'm worried that if and when i finally get a 'yes' to autism in some form i will obvously have to come off mental heath medication. I have 15 years worth in my system and am worried about any withdrawral that will enevitably happen. Has anyone been in a similar situation because i've read that mistaking autism for mental health is common in the autism community The NHS does this a lot. Can any one help me on this one?
Hi all. I have a dentist problem. But firstly will tell u about my dentist experiences.. So as a child I was very anxious if needed to go to any different dentist that one I was use to since a baby. Though still hasn't been very scared and mostly seated trough calmly. As an 15 year old I have an trauma with dentist who put pain killer not correctly, I never been in so much pain! Dentist was screaming at me that he put medicine correctly and talking me names! Soon after (as he was so angry he force me to leave before he finished) I got massive infection & tooth been took out...
My 5 year old had his review clinic appointment back in December, he had a junior paediatric doctor see him as our usual doctor has now left and moved on to a different post. When he saw us he said that he would need to do a report and pass it onto his seniors.