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Life at home

Hayles's picture

Could it be that this Christmas we MAY actually be able to enjoy it a Little???

Mon 14 Dec 2015 2:55pm

Where has the year gone..? To be honest I am glad I blinked and missed it as I don't want to be reminded about how the year started off for us..  

We are in December now and since Sept lots of Amazing Milestones have been reached with Mark who is STILL doing brilliantly in school. 

* PE still joining in and being helped by OT with Hand, Eye coordination and ball work. He is still working out in gym. He received a certificate for running 1 mile, then 2 miles and most recently 5 miles. He's losing his tummy also and is Happy

Autist2's picture


Thu 10 Dec 2015 8:22pm

It is 20.20. I have not yet got around to having a wash, because when I woke up I immediately became engrossed reading articles on a website that had links to lots of other articles and have been busy reading ever since. I am now having a lot of anxiety about the fact that I haven't washed, I need and want to wash, but I am finding it very difficult to do it now. I also need to go shopping, and need to get up early tomorrow, and it is getting later and later. Do other autistics find themselves stuck like this? Why is washing so anxiety enducing? Particularly when done late?

BlueMax's picture

ZoeVincent95's picture

The Everyday Uses of Music by Children with an Autistic Spectrum Disorder

Mon 23 Nov 2015 8:42pm

Hi, my name is Zoe, and I am a 3rd year university student, studying Music Performance. I am currently writing my dissertation, and looking into 'The Everyday Uses of Music by Children with an Autistic Spectrum Disorder'. I am carrying out a questionnaire to find out more, which is aimed at parents, whose children are aged between 5 and 7 and are on the Autistic Spectrum. The questionnaire is mainly open questions, and is completely anonymous. Would anyone on this forum be willing to fill out the questionnaire for me? I will paste it below.

Lovelychild's picture

Help-High functioning 10 yr old with sensory issues of smell, taste and touch

Mon 23 Nov 2015 1:35pm

Please could someone advise if there has been any solution found so far or is there any ongoing research that can help my son who currently cannot be kissed, has to shut doors around the home and cannot join in family meals when he thinks someone is having milk, cheese, tomatoes, bananas or certain foods he has a sensory issue with?

samkay29's picture

Autism, dla and facing surgery

Fri 20 Nov 2015 3:50pm

have two autistic children aged 15 and 13. Both were diagnosed officially at the age of 10. My son is 13 and has toe walked ever since he learnt to walk. This has in the last couple of years caused a problem with him getting pain both in his legs and his lower back. He was referred to physiotherapy and to orthotics and was fitted with night splints as we was told he has extremely tight tendons in both ankles and very little range of motion.

Autist2's picture

really upset - issues with mum

Sun 15 Nov 2015 9:31pm

So I moved out of my parents' house last week, and since my mother is no longer caring for me I stopped her carer's allowance so that I would be able to get disability premiums, as I have been really struggling financially. I warned her before it was going to happen today. (I don't know if they will stop this week or next week). She said that she thought she would still get the carer's allowance until I was completely settled and could get everywhere by bus and not need lifts or come round for meals or anything.

michaelz's picture

andrew edwards on bbc 5live's afternoon edition - plus listeners' phone calls

Wed 4 Nov 2015 1:05pm

afternoon live - bbc 5live - 2 hours and 20 minutes into programme approx.

interview with andrew edwards and phone calls from members of the public.

afternoon edition -

andrew on the today programme earlier this year -

andrew : mr MUTV - their very own `statto` -

michaelz's picture

the life you never expected - book by andrew and rachel wilson

Thu 29 Oct 2015 11:35am

click on free copy tab at top of page for free online access.

Unexpected items

One of my favourite reads over the summer was Andrew and Rachel Wilson’s new book The Life You Never Expected (IVP). The couple, who are both involved in church leadership, share how their lives were turned upside down when their two children unexpectedly regressed into a form of severe autism.

Having interviewed Andrew a number of times in his capacity as a theologian, it was a revealing portrait of the complexity of the real-life family circumstances...

SherpaMum's picture

Help with team sports

Wed 7 Oct 2015 5:38pm

We had parents ' evening last night.  My son is 8 and high functioning.  Academically everything is good, the school are working with him and he is learning to cope better.

Team sports are another matter, my son is really struggling.

He does hockey, which he is no good at, but he seems to work OK.  Hockey is taught boys and girls.  Rugby is a nightmare.  He won't work in the small group of boys and is terrible.


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